Monday, March 29, 2010

We apologize for the length of time since our last update but we have been trying to get all our ducks in a row before we get too much information out there. We have received a second opinion from an adult oncologist just to be sure that Jordon's choice of not doing chemotherapy is ok. We also met with the radiation oncologist last Friday who gave us a lot of great information as well.

Jordon's tumor is what is known as a mixed germ cell tumor. Pure tumors, ones that are not of mixed cancer cells, are much easier to treat than mixed tumors. Mixed germ cell tumors are usually highly sensitive to chemotherapy which is why we did chemotherapy with the last reoccurance. Some cancers are more sensitive to chemo while others are more sensitive to radiation which is why all cancers are treated differently. That being said, Jordon's cancer responded to chemo but was obviously not completely erradicated it. So, there is a good chance that it may be radiation sensitive. Although, the general opinion is that Jordon should do chemo, the adult oncologist we met with today is ok with Jordon only doing radiation therapy for now. I could give so much more detail of things we have learned in the past week but I will keep it simple. We just want everyone to know that, in light of all the recent information we have received, we are behind Jordon in his decision to forego chemo right now and just do radiation.

He will possibly start radiation on Wednesday, April 7th. He will go in this day for them to go over scans to determine the exact location the radiation will be given. If he chooses, he can start the same day. He has a trip to CA with class he is hoping to get clearance to go on so if that happens he will start radiation on Monday the 12th. The exact length of time has yet to be determined but somehwere in the range of 3-4 weeks, Monday thru Friday for about 20 minutes at at time. They say it will feel like a bad sunburn and the biggest risk is small bowel obstruction due to the scar tissue.

Jordon is feeling great and has been in wonderful spirits. He was back to school last week and all caught up from the short time he missed. Once again, thank you to all for the support and prayers and we will let you know how it goes.

3 comments:

MammaBoo said...

Prayers from the Sampson/Emery Clan in Albuquerque
Jordon you are an inspiration, Your a fighter just like your Dad Even my Daughter Prays for you. Cotton sends her prayers also and still wants her dance when your feeling better.
Take care
Patty (Trish) Cotton Danny Stasia n Jordan

Anonymous said...

Jordon,
I read the entire blog this morning and you seem like a very brave and focused person - I met you when you were very young and ever since then you had determination and strength in your body language and your eyes, now you are showing that it wasn't just for looks. One thing your dad and I have learned is that to succeed in ANYTHING you REALLY have to believe you will accomplish it - you CAN beat your illness and you WILL come out healthy and strong not only physically but emotionally as well. Don and Brooke are very close to us and that makes you very special to me - keep up the good work buddy, you are amazing and a source of inspiration for all of us. Let us know what we can do to keep you uplifted. I'll try to make it out for golf.

Take care,

Guillermo, Brenda, Alyssa, Alexandra.

Anonymous said...

Love you Jordy! Stay strong and know that you are loved and thought about often. Take care of yourself as best you can. Enjoy your trip if you are allowed to go, if not, let us know if another Candy Bouquet is needed :) Love you!

Auntie Heather and Kris